Tuesday, March 31, 2009



I Know it is another post of our little Tyler, but,I have felt that I should post as much info about Tyler and what it is like to bring home a baby with this condition. He has been home almost a week and it has been a big adjustment. I am so glad to be home and to have him home. The first pic I have posted is to show you the color of Tyler's hands, they are almost always a blue-purple color. The second pic is of him crying, his whole body will turn dark purple (although you can't tell in this pic I just thought it was cute!), very typical for a hlhs baby. The last pic is him with his home medical equipment, a sat. monitor, oxygen and feeding pump and bags of supplies. Tyler keeps me very busy and worried all the time, but he also brings so much joy to my heart. It is funny because even though he has a lot going on with his health, he still just seems like a normal sweet baby! I know that there are people that have veiwed our blog looking for info on HLHS, so I hope this helps give you an idea of what it is like to bring home a baby with this condition.

Wednesday, March 25, 2009

Home at last

After almost three weeks, but well ahead of schedule, Jamie brought Tyler to home sweet home yesterday. The home health care team dropped off his oxygen tanks, feeding tubes, and pump for the little fella. A nurse came by later to show us how to use everything. It's a lot of work, but, as you can see, he's definitely worth it.















He's gonna have a few scars. Good thing chicks dig them.
















Not to be forgotten - today is Kaylin's birthday. She is now a bona fide 3 year old.

Sunday, March 22, 2009

Almost home

Tyler was discharged from the ICU last Wednesday and will be coming home on Tuesday! He is way ahead of schedule and we couldn't feel more blessed. Thank you all for your fasting and prayers. We are grateful for you. Here are a a couple of pictures of him since he's been out of the ICU. You can see he has almost all of his tubes out. All that is left is his oxygen and feeding tubes.

Tuesday, March 17, 2009

Finally!


Today, after a week and a half, we at last got the opportunity to hold Tyler. Neither of us wanted to put him down. He was so peaceful when he was being held. Now we really can't wait to bring him home.

Monday, March 16, 2009

Breathing Easier

Tyler had his breathing tube removed today. I'm sure he was thrilled about that. the last couple of days he had been seen trying to push it out with his tongue. Now he just has a "regular" oxygen tube that leads to his nostrils. He continues to make progress. We should be able to hold him for the first time tomorrow!

Thursday, March 12, 2009

Awake!

This morning they took Tyler off his muscle relaxer medication and let him wake up. He was only up for a little while, as they put him under again so they could close up his chest. He did wake up from that, but was pretty groggy. You can see that he has a much smaller bandage on his chest.

The doctor's say he is "above the curve," despite the lower lobe of his left lung being partially collapsed. We are very thrilled with his progress.

P.S. - Anyone else watching this Syracuse - UCONN game? They are about to start their SIXTH overtime! (Update: Syracuse won in the 6th OT)

Wednesday, March 11, 2009

Tyler and Basement Updates (Viewer discretion is advised!)

Tyler is doing well in his recovery so far. He's still being closely monitored, but the doctors are optimistic. They also hope they will be able to close his chest up tomorrow. They don't close it up after the surgery because the heart swells. The other kids got to see him for the first time yesterday. Brandon got upset at what he saw, so we covered Tyler with a blanket so the other kids wouldn't be so disturbed. You can see he has a lot more tubes and such than he did pre-operation. It's a very sad sight.


























As for the basement, other than some finishing work (door knobs, finish caulking and sanding some of the baseboards, electrical outlet/light switch face plates, and some paint touch up, we are essentially finished with the basement. A big thanks to the Harvest Hills 8th Ward, who helped with the painting Monday night. Without them, we wouldn't be close to finishing right now. Also a big thanks to my neighbor Kenny Frasure and to Steven Drakulich, who spent hours helping me out late at night so we could finish things up. Here are a few pics of what's happened since Monday.

Tuesday, March 10, 2009

Update on Tyler

Just a quick note. Tyler did very well during his surgery and is recovering. The surgeon thought his heart did great. Now is the delicate time for him to heal. He will be in the ICU for another couple of weeks. I'll try to have more later, but it's been crazy.

Saturday, March 7, 2009

All new pics and a video!



Here are a couple of pictures of Tyler and even a video that we took of him in the NICU. Tyler will have his first surgery tomorrow at 9:00. It will take between 5-6 hours to complete.
video

Friday, March 6, 2009

More Pictures of Tyler

Here are a few more picture of Tyler. The first two were taken when he was in the transport "tube" on route from the University hospital NICU to Primary Children's NICU. BTW, he was 19.5 inches long. He's had a little trouble breathing (hence, the breathing tube), but other than that, he's doing well.

Tyler Craig Moffitt is Here!


Presenting Tyler Craig Moffitt. Born this morning at 11:50 a.m. 8 lbs (we haven't been told the length yet. They wisked him off to the NICU right after he was born. In fact, our room has a window to the NiCU, so they passed him through that. About fifteen minutes later, they let me go in and see him for a few minutes and take some pictures. They say he's doing well. We know he's in good hands, because Susan Yee, a family friend from Ridgecrest, works in the pharmacy department for the NICU here. (Cue "It's a Small World"). It's tough not being able to have him in the room with us. Hopefully we'll find out soon exactly when he'll have his surgery. More info to come (I'll probably just edit this post, so check back to see if there are updates.

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He's coming!

We are at the hospital right now. Jamie is in labor. They are going to break her water pretty soon. I should have some pictures up later today.

Monday, March 2, 2009

Basement Update #2

The drywall was delivered and installed today. Tomorrow they will tape it, mud/texture it, and put the corners on. With any luck, we'll be putting the primer on and painting tomorrow night. Then it will be baseboards, doors and carpet. Hopefully, I'll remember to take pictures of each stage now.

Jamie found out today that she is dilated to a 3, so we'll really be lucky if we get this done before the baby is born. But we're definitely making progress. No matter what happens we should be finished by the end of next week. Here are some pictures. Sorry they aren't very good, but some of the lights aren't hooked up and it was dark when I took them.


This will be the boys' room.


Here is the family room.


Here is another shot of what will be the family room.



We'll turn this into a closet for the boys and probably use the small crawl space for additional storage.