Saturday, July 23, 2011

Tyler continues to recover.

Yesterday, Tyler was moved from the cardiac ICU to the "floor." He still has his drainage tubes and can get uncomfortable when his pain medication wears off, but overall he is doing quite well. This evening, especially he was giggling and playing - huge progress. We are hopeful he will have his drainage tubes removed soon so we can get that much closer to bringing him home.

Fortunately and unfortunately, his brothers and sisters won't be around when he comes home. His grandparents are taking them to California to stay for a couple of weeks. While we will miss them immensely, it will really help Tyler to have Jamie be able to focus on him during his recovery.

Again, we are immensely blessed that he is recovering so quickly. It hasn't all been perfect. There have certainly been some scares, but his overall progress has been so much greater than what we expected prior to the surgery. We give much credit to all you that have fasted and prayed for our little guy. Heavenly Father has listened to and answered those prayers. Thank you so much for your support.

Sunday morning and we learned that Tyler will have his chest tubes and pacer lines out tomorrow morning. Although it's probably not going to happen, there is a chance he could go home tomorrow night. That would be awesome!

Thursday, July 21, 2011

Way too long between posts!

It's been well over a year since our last post. Most (if not all) of you follow Jamie and/or me on Facebook, so it was easy to fall in the habit of letting "status updates" suffice. It's a lot harder to share all of your thoughts and feelings that way. We need to get back to blogging to provide the kind of detail that the important moments in life deserve.

As many of you know, our youngest son Tyler just went through heart surgery once again. This was the third of three surgeries to provide a palliative "fix" to his heart defect Hypoplastic Left Heart Syndrome. This surgery was the Fontan procedure. I don't have all the medical and anatomical terminology down pat to explain it. Essentially, they built a wall to keep the red and blue blood from mixing, and they put in a larger shunt to allow better blood flow as he grows. Hopefully, this allow his heart to last into adulthood.

Tyler is recovering well and is even a little ahead of schedule, We are so grateful for all your prayers on his behalf. We know our Father in Heaven is looking out for this special boy. We have truly seen miracles from above.

I hope to update more frequently. I apologize for not having any pictures, but the wi-fi spot isn't great where we're at now.